savingsadierae
About
Mother and daughter duo, Ashley Haywood and Sadie Rae, who raise awareness for a fatal type of childhood dementia called Sanfilippo Syndrome. Children affected by the disease lose memory and forget how to walk, talk, and feed themselves. Sadie Rae was diagnosed shortly after her birth. They have amassed more than 220,000 followers on their savingsadierae TikTok account.
Trivia
Their story has been shared in People magazine, Newsweek, and ABC News.
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