#307,702 Most Popular
About
Influencer, Instagram star, TikTok star, online content creator, social media personality, and advocate for her daughter's battle with Sanfilippo Syndrome, which causes early onset dementia and a host of other health problems which result in death by around age 20.
Before Fame
Her first born child, Sadie Rae, began showing signs of Sanfilippo Syndrome as a baby. She uses social media to raise awareness for the signs to look out for, as well as try to come to terms with the prognosis.
Trivia
Her posts on Instagram and TikTok feature happy moments with her daughter, Sadie Rae, as well as tips for what to look out for if you're worried your child may have Sanfilippo Syndrome. She has over 190,000 followers on Instagram and 220,000 on TikTok, posting under the handle savingsadierae.
Family Life
Her name is Ashley Haywood and she lives in North Carolina. She is divorced from the father of Sadie Rae.
Associated With
She often posts TikToks to popular songs, like "Fame" by Irene Cara.
