Melissa Jaquez
#154,527 Most Popular
About
TikTok personality known for raising awareness about the rare skin disease Epidermolysis bullosa, also known as butterfly syndrome. She posts images of her son Marky who was born with the disease. In 2021, she said videos of her son were taken down by TikTok for graphic content. She has earned more than 1.3 million followers on her melissa_20101 account.
Before Fame
She gave up her job as director of her local social services to care for her son Marky.
Trivia
She said police accused her of burning her sons, after their disease left them with blistering skin. She and her son Marky were interviewed by journalists including Tamron Hall.
Family Life
In December 2021, her son Marky died at age 21. Her son Carlos also died from the disease when he was 14. She also has a son named Michael.
Associated With
She received support from celebrities including actor Josh Brolin, who thanked her family "for the smiles and the punch to the spiritual heart of so much."
