Jennie Wilklow-Riley

Instagram Star

Birthplace United States

#84,357 Most Popular

About

Instagram star who grew her following sharing about her daughter's rare skin disease, Harlequin Ichthyosis. Her harlequindiva Instagram page has amassed more than 230,000 followers, and the page Hope for Anna has more than 350,000 followers on Facebook. 

Before Fame

She created the Instagram account with a dual purpose, to share information about the disease and share parts of her daughter's life. 

Trivia

In 2024 she began a petition to take down a Netflix documentary about Harlequin Ichthyosis that she felt didn't adequately depict the disease. 

Family Life

In 2017 her daughter Anna was born with a skin disease that causes her skin to reproduce at a highly accelerated rate. She and her husband James also have two sons. 

Associated With

chris2handsome2 is another social media star who grew a following sharing about life with a rare health condition.